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User Groups and Charities Across East Midlands and Wider


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Electromagnetic Sensitivity





Elecrosensitivity UK www.es-uk.info

A charity that aims to provide information to help those who have become sensitive to mobile and cordless phones, their masts, wifi, and a multitude of common everyday electrical appliances. Includes latest research and links.

Ellis-Van Creveld Syndrome





Parent’s website http://ellisvancreveld.co.uk/evc/index.htm

online support group http://health.groups.yahoo.com/group/EvCFamilies/



A website to inform parents about Ellis-van Creveld syndrome and too facilitate parent-parent networking and to collect and share current medical information about EvC and its treatment.


Encephalitis

The Encephalitis Society www.encephalitis.info

Provides a support service and information resources for sufferers and their families. They also conduct and support research into causes and treatments.

Endometriosis





Endometriosis SHE Trust (UK)

www.shetrust.org.uk/index.php

Endometriosis UK

www.endometriosis-uk.org

Online support groups and information.

Enuresis

Education and Resources for Improving Childhood Continence (ERIC) www.eric.org.uk

36 Old School House, Britannia Road


Kingswood, Bristol BS15 8DB

0117 960 3060



info@eric.org.uk

A website dedicated to supporting children and young people, their families and health professionals. They provide information, confidential support, services and resources. 

Epidermyolysis Bullosa





www.debra.org.uk

DebRA House,


13 Wellington Business Park,
Dukes Ride,
Crowthorne,
Berkshire. RG45 6LS.

Telephone: 01344 771961 Fax: 01344 762661
Email: debra@debra.org.uk


Provides information and practical support.

Epilepsy

The David Lewis Centre www.davidlewis.org.uk

Epilepsy Action www.epilepsy.org.uk

Sudden Unexpected Death in Epilepsy (SUDEP) www.sudep.org

For a Better Life with Eplilepy (FABLE) www.fable.org.uk

The National Centre for Young

People with Epilepsy www.ncype.org.uk

The National Society for Epilepsy www.epilepsysociety.org.uk





Erb’s palsy

Erb’s Palsy Group www.erbspalsygroup.co.uk

Erb’s Palsy Group


60 Anchorway Road,
Coventry,
CV3 6JJ

info@erbspalsygroup.co.uk

Tel:024 7641 3293




Offers support, information and networking.

Essential Tremor

The National Tremor Foundation www.tremor.org.uk

The National Tremor Foundation


Disablement Services Centre
Harold Wood Hospital
Gubbins Lane
Harold Wood
Romford RM3 0AR
Essex, UK

tremorfoundation@aol.com

01708 386399



An organisation that aims to provide help, support and advice to all those living with all forms of tremor.

False Memory

British False Memory Society www.bfms.org.uk

Bradford on Avon

Wiltshire

BA15 1NF


01225 868682

Information, articles and discussion forum.

Familial Haemorrhagic Telangiectasia





Telangiectasia Self Help Group www.telangiectasia.co.uk

Mrs Diana Lawson


Co-ordinator/Organiser
Telangiectasia Self Help Group
39 Sunny Croft
Downley
High Wycombe
Bucks
HP13 5UQ
ENGLAND

Tel : (+44) 01494 528047



info@telangiectasia.co.uk

A website that maintains a register of sufferers and puts affected families in touch with one another.

 

Familial Spastic Paraplegia





The Hereditary Spastic Paraplegia Support Group www.hspgroup.org

Dave Harris (Group Secretary)



18 Lodmoor Avenue

Weymouth

Dorset

DT3 5AF







01305 772286




The Group aims to encourage and support members and to assist research.
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