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User Groups and Charities Across East Midlands and Wider

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Electromagnetic Sensitivity

Elecrosensitivity UK

A charity that aims to provide information to help those who have become sensitive to mobile and cordless phones, their masts, wifi, and a multitude of common everyday electrical appliances. Includes latest research and links.

Ellis-Van Creveld Syndrome

Parent’s website

online support group

A website to inform parents about Ellis-van Creveld syndrome and too facilitate parent-parent networking and to collect and share current medical information about EvC and its treatment.


The Encephalitis Society

Provides a support service and information resources for sufferers and their families. They also conduct and support research into causes and treatments.


Endometriosis SHE Trust (UK)

Endometriosis UK

Online support groups and information.


Education and Resources for Improving Childhood Continence (ERIC)

36 Old School House, Britannia Road

Kingswood, Bristol BS15 8DB

0117 960 3060

A website dedicated to supporting children and young people, their families and health professionals. They provide information, confidential support, services and resources. 

Epidermyolysis Bullosa

DebRA House,

13 Wellington Business Park,
Dukes Ride,
Berkshire. RG45 6LS.

Telephone: 01344 771961 Fax: 01344 762661

Provides information and practical support.


The David Lewis Centre

Epilepsy Action

Sudden Unexpected Death in Epilepsy (SUDEP)

For a Better Life with Eplilepy (FABLE)

The National Centre for Young

People with Epilepsy

The National Society for Epilepsy

Erb’s palsy

Erb’s Palsy Group

Erb’s Palsy Group

60 Anchorway Road,

Tel:024 7641 3293

Offers support, information and networking.

Essential Tremor

The National Tremor Foundation

The National Tremor Foundation

Disablement Services Centre
Harold Wood Hospital
Gubbins Lane
Harold Wood
Romford RM3 0AR
Essex, UK

01708 386399

An organisation that aims to provide help, support and advice to all those living with all forms of tremor.

False Memory

British False Memory Society

Bradford on Avon


BA15 1NF

01225 868682

Information, articles and discussion forum.

Familial Haemorrhagic Telangiectasia

Telangiectasia Self Help Group

Mrs Diana Lawson

Telangiectasia Self Help Group
39 Sunny Croft
High Wycombe
HP13 5UQ

Tel : (+44) 01494 528047

A website that maintains a register of sufferers and puts affected families in touch with one another.


Familial Spastic Paraplegia

The Hereditary Spastic Paraplegia Support Group

Dave Harris (Group Secretary)

18 Lodmoor Avenue




01305 772286

The Group aims to encourage and support members and to assist research.
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