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User Groups and Charities Across East Midlands and Wider

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Coeliac (Dermatitis Herpetiformis)

Congenital Adrenal Hyperplasia

Aims to give support to families and sufferers, increase awareness of the condition to the public and to the medical profession and raise funds to support research.

Crohn’s Disease

Crohn’s in Childhood Research Association

National Association for Colitis and Crohn’s Disease

Cushing’s Disease/ Cushing Syndrome

Patient led and run website with information and forum.

Cyclical Vomiting Syndrome

A registered charity providing information and supporting sufferers and their families or those affected by Cyclical Vomiting Syndrome.

Cystic Fibrosis

Cystic Fibrosis Trust

Information, support and research and an online forum.

Dancing Eyes

The Dancing Eye Syndrome Trust

The Dancing Eye Syndrome Trust provides support and information to families of children with Dancing Eye Syndrome.


The British Deaf Association

Deaf Education Through Listening and Talking (DELTA)

National Association of Deafened People

National Deaf Children’s Society

Royal Association for Deaf People

Royal National Institute for Deaf People

The Elizabeth Foundation for Deaf Children



The Alzheimers Society

Lewy-Net Dementia with Lewy Bodies

Pick’s Disease Support Group

Dental Anxiety

Beyond Fear Dental phobia Support

Dental Fear Central


Depression Alliance

Depression UK

MDF the Bipolar organisation

Dermatomyositis/Polymyositis/Inclusion Body Myositis

Myositis Support Group

Provides advice and support to individuals and their families affected by Dermatomyositis, Polymyositis, Inclusion Body Myositis and Juvenile Dermatomyositis. Also raise funds and promote medical research to improve the diagnosis, treatment, management and understanding of these rare illnesses.

Devic's Disease

Devics and NMO Worldwide Support

Has information about the condition, chat forums, a page where you can advertise for a penpal, a special area for families affected by Devic's and NMO, and links to other sites that could be of interest.


Diabetes UK

Diabetes UK is the largest organisation in the UK working for people with diabetes, funding research, campaigning and helping people live with the condition.


Ableize Disability Directory

Assist Uk

Association of Disabled Professionals

Association of Wheelchair Children

Queen Elizabeth’s Foundation for Disabled People

BLESMA British Limbless Ex-Service Men's Association

British Computer Society Disability Group


Disability Alliance

Disability, Pregnancy & Parenthood International

Disabled parent’s Network

Limbless Association

RADAR (Royal Association for Disability And Rehabilitation)

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