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User Groups and Charities Across East Midlands and Wider


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Bladder and Bowel


The Bladder and Bowel Foundation http://www.bladderandbowelfoundation.org/

A UK wide charity that provides information and advice on a range of symptoms and conditions related to the bladder and bowel.

Blindness


Action for Blind People www.actionforblindpeople.org.uk

Guide Dogs for the Blind



www.guidedogs.org.uk

National Federation of Families with Visually Impaired Children



www.look-uk.org

National Blind Children’s Society



www.nbcs.org.uk

Royal National Institute of Blind People



www.rnib.org.uk


Borderline Personality Disorder


BPD World

www.bpdworld.org

Includes support, information and a community chat forum.

Bowel Defects and Abnormalities


Gastrochisis Exomphalos Extrophies Parents Support (GEEPS) www.geeps.co.uk

An international network of families and friends of children born with abdominal abnormalities.

Brain Injury


Brain Injury Rehabilitation Trust (BIRT) www.birt.co.uk

British institute for Brain Injured Children (BIBIC) www.bibic.org.uk

Foundation for the Brain Injured Infant www.cerebra.org.uk

Child Brain Injury trust www.cbituk.org





Brain Tumour


Brain and Spine Foundation www.brainandspine.org.uk

Brain Tumour Uk www.braintumouruk.org.uk




Brittle Bone


Brittle Bone Society www.brittlebone.org

Through the Society, families can get in touch with each other and share issues on how to cope. The Society organises local meetings and an annual conference, which enables families to meet and exchange ideas.

The Society can also give help and advice on benefits, mobility, education, equipment, medical issues including genetics, and other associated issues.


Cancer


www.beatingbowelcancer.org

www.bowelcanceruk.org.uk

www.breastcancercare.org.uk

www.clicsargent.org.uk

www.macmillan.org.uk

www.cancercounselling.org.uk

www.cancerlt.org

www.cancerkin.org.uk

www.chect.org.uk

www.christianlewistrust.co.uk

www.kcuk.org

www.mariecurie.org.uk

www.mouthcancerfoundation.org

www.breastcancergenetics.co.uk

www.nsoc.co.uk

www.opa.org.uk

www.ovacome.org.uk

www.pennybrohncancercare.org

www.prostate-cancer.org.uk

www.rarercancers.org.uk

www.thyroidcancersupportuk.org


Candida


National Candida Society

www.candida-society.org.uk

Association for Children’s Palliative Care



www.act.org.uk

Crossroads Care www.crossroads.org.uk

Carers UK www.carersuk.org

The Princess Royal Trust for Carers www.carers.org




Aims to provide information and support to people with candida overgrowth and raise awareness of candida - its causes, treatments and related conditions.

Carers


Able Community Care www.uk-care.com





Cerebral Palsy


Living with Cerebral Palsy www.livingwithcerebralpalsy.com

www.scope.org.uk



CJD


www.cjdsupport.net

A patient support group providing help and support for people with all strains of Creutzfeldt-Jakob disease, their carers and concerned professionals.

Cleft Lip


www.clapa.com

Provide information including how to access treatment, activities and specialized bottles and teats for babies.

Cluster Headaches


Organisation for the Understanding of Cluster Headaches (OUCH) www.ouchuk.org

Exists to raise general awareness of the condition within the medical profession and the general public. We offer support and guidance to sufferers and their families and work closely with the Institute of Neurology in London where our Patron, Professor Peter Goadsby, runs the Headache Group. Also conduct research.
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