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User Groups and Charities Across East Midlands and Wider

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020 8473 7493


Agenesis of the Corpus Callosum

Telephone: 0208 949 6598


Post: CORPAL, 5 Gordon Way, Orton Longueville, Peterborough, Cambs, PE2 7AE


Al-Anon Family Groups UK & Eire

61 Great Dover Street, London SE1 4YF

Confidential Helpline 020 7403 0888

(Helpline available 10 am - 10 pm, 365 days a year)

Fax: 020 7378 9910


Alzheimer's Society

(Leicester Office) The Lodge

46 Humberstone Gate

Tel: 0116 251 0366


Provides information, advice and support to carers of people with dementia, including home visits, carers support groups, advice, advocacy and telephone helpline. Please telephone for details of Carers Support Groups.

Breast Cancer Voices
If you would like to talk to someone about becoming involved with Breast Cancer Voices please contact Amarjit Kaur, at or call on 0845 092 0800.

Ankylosing Spondylitis

National Ankylosing Spondylitis Society (NASS).

As well as support they offer focus groups and use volunteers to help people with AS and help to raise awareness at local and national level.


Anorchidism support group

Also know as;

Testicular regression syndrome

Vanishing testes syndrome



Provide a means of networking with affected families of boys with congenital or acquired absence of testes as well as education and information.


Angelman Syndrome Support Education and Research Unit

A chromosome disorder that causes severe learning difficulties. Since the condition was first identified in 1965 to date only about 350 people (mostly children and young adults) have been diagnosed in the UK. This number is increasing due to the improvement and ease of Genetic testing.

ASSERT Trustee's are all relatives of children with Angelman Syndrome. They provide information for doctors to give to families of those diagnosed with this and fund research into the condition.


AntiCoagulation (ACE)

Supports patients, their families, carers and health care professionals on all aspects of anticoagulation therapy.



Speakability is the national charity dedicated to supporting and empowering people with Aphasia and their carers.

Speakability is also developing a network of Aphasia Self-Help Groups

Aplastic Anaemia

Aplastic Anaemia Trust

Fighting bone marrow failure.

Support sufferers of aplastic anaemia and allied disorders. The Support Group offers support and information to patients and their families; to anyone coping with aplastic anaemia.

Has a network of Group Members.


Arrhythmia Alliance (A-A)

Arrhythmia Alliance (A-A) is a coalition of charities, patient groups, patients, carers, medical groups and allied professionals. These groups remain independent, however, work together under the A-A umbrella to promote timely and effective diagnosis and treatment of arrhythmias.

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