Androgen Insensitivity Syndrome
Support Group (AISSG)
www.aissg.org
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An International group that aims to support affected adults/families all over the world, as well as contributing to a better understanding of the various conditions, and of how they should be treated by the medical community.
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Fetal Anti-Convulsant syndrome
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Organisations for Anti Convulsant Syndromes www.oacs-uk.co.uk
Terri Mckay (Parent Liaison Officer)
P.O Box 772
Pilling,
Preston
PR3 6WW
Tel: 0151 356 5949
Email: tegs78@ntlworld.com
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A service provided to help and advise the parents / carers and anyone else involved with these children professional or non professional.
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Fibroids
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Fibroid Network Online Support Group www.fibroidnetworkonline.com
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Information and online discussion groups.
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Fibromyalgia
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Fibromyalgia Association UK www.fmauk.org
Fibromyalgia Association UK
P O Box 206, Stourbridge, DY9 8YL
Fax: 0844 887 9033
Email: charity fmauk.org
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Online forum.
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Foetal Alcohol Syndrome
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Foetal Alcohol Syndrome Aware UK www.fasaware.co.uk
Foetal Alcohol Syndrome Trust www.fasdtrust.co.uk
National Organistaion on Foetal Alcohol Syndrome UK www.nofas-uk.org
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Fragile X
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The Fragile X Society www.fragilex.org.uk
Rood End House
6 Stortford Road
Great Dunmow
Essex CM6 1DA
01371 875100
info@fragilex.org.uk
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Provides support, information and education and encourages research.
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Galactosaemia
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Galactosaemia Support Group www.galactosaemia.org
GSG, 31 Cotysmore Road, Sutton Coldfield, West Midlands, B75 6BJ
Tel: 0121 3785143
Email: sue@galactosaemia.org
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Offers support and networking.
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Reflux
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Living with Reflux www.livingwithreflux.org
PO Box 10669
Harlow
CM20 9HE
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Provides support and online forum.
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Gaucher’s Disease
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Gaucher’s Association www.gaucher.org.uk
3 Bull Pitch
Dursley
Gloucestershire GL11 4NG
United Kingdom
Phone/Fax: +44 1453 549 231
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Promotes awareness and research as well as providing information.
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Group B Strep
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Group B Strep Support www.gbss.org.uk
Email: info@gbss.org.uk
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Offers information and support and generates continued support for research.
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Genetic Disorders
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Genetic Alliance UK www.geneticalliance.org.uk
Genetic Alliance UK
Unit 4D, Leroy House,
436 Essex Road
London N1 3QP – UK
Email: mail@geneticalliance.org.uk
0207 704 3141
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The national alliance of patient organisations with a membership of over 130 charities supporting all those affected by genetic disorders. Offers support and information.
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Glaucoma
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International Glaucoma Association www.glaucoma-association.com
Woodcote House
15 Highpoiunt Business Village
Henwood
Ashford
Kent
TN24 8DH
info@iga.org.uk
01233 64 81 64
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A patient-based organisation which works to prevent glaucoma blindness by providing information, literature and advice.
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The Association for Glycogen Storage Disease (UK) www.agsd.org.uk
9 Lindop Road, Hale, Altrincham, Cheshire, WA15 9DZ.
Tel: 0161 9807303
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Provides support and information.
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Goldenhar Syndrome
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Goldenhar Family Support Group www.goldenhar.org.uk
Group Secretary suzanne@goldenhar.org.uk
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A user run site offering information and support.
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Gorlin Syndrome
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The Gorlin Syndrome Group www.gorlingroup.org
01772 496849
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Offer guidance, advice and information to those affected by Gorlin Syndrome and aim to advance the education of the medical profession into Gorlin Syndrome and its implications for the family and to promote research into the causes, effects, treatment and management of Gorlin Syndrome.
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Gout
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The UK Gout Society www.ukgoutsociety.org
UK Gout Society Secretariat
PO Box 527
London
WC1V 7YP
07778 304233
Email: info@ukgoutsociety.org
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An information resource.
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Growth
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The Child Growth Foundation www.childgrowthfoundation.org
The Restricted Growth Alliance www.rgaonline.org.uk
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