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User Groups and Charities Across East Midlands and Wider


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Disfigurement


www.birthmarksupportgroup.org.uk

www.changingfaces.org.uk

Facial disfigurement and cancer www.lets-face-it.org.uk






Down’s Syndrome


Down’s Heart Group www.dhg.org.uk

Down’s Syndrome Association www.downs-syndrome.org.uk



The Down's Syndrome Association provide information, counselling and support for people with Down’s syndrome, their families and carers, as well as being a resource for interested professionals.

Drugs


Families, Drugs and Alcohol (Adfam) www.adfam.org.uk

Cocaine Anonymous www.cauk.org.uk

Families Anonymous www.famanon.org.uk

Narcotics Anonymous (UKNA) www.ukna.org

Over the counter Drug Information Agency www.over-count.weebly.com

www.seroxatusergroup.org.uk





Dysautonomia


Dysautonomia Society

www.dsgb.org

Aim to alleviate the suffering from Familial Dysautonomia in any way, raise public awareness of the disease and raise funds for research.

Dyschondrosteosis


Dyschondrosteosis Support Group

www.divdev.fsnet.co.uk

A self-help group or support group for people with dyschondrosteosis ( DCS ) and/or Madelung Wrist Deformity (MWD ).

Dyspraxia


Dyspraxia Foundation www.dyspraxiafoundation.org.uk

The Foundation seeks every opportunity to increase understanding of Dyspraxia, particularly among professionals in health and education and encourages its local groups to do the same. It continues to encourage its smaller local groups to thrive and develop their own ideas and to distribute information and fund raise for themselves.

Dystonia


Dystonia Society

www.dystonia.org.uk


A UK-wide charity providing support, advice and information for anyone affected by the neurological movement disorder known as dystonia.

Eating Disorders


Beating Eating Disorders (Beat) www.b-eat.co.uk

Overeaters Anonymous www.oagb.org.uk





Ectodermal Dysplasia

Ectodermal Dysplasia Society www.ectodermaldysplasia.org


The Ectodermal Dysplasia Society
108 Charlton Lane
Cheltenham
Glos
GL53 9EA
England

Tel: +44 (0) 1242 261332


Fax: +44 (0) 1242 261332 but please call before sending a fax
Email: diana@ectodermaldysplasia.org

A charity dedicated to improving the health and wellbeing of people whose lives are affected by Ectodermal Dysplasia (ED). They work together with people who have ED, their families, researchers, health and other professionals to develop and share expertise, increase awareness and understanding, and assist with the day-to-day management of ED.

Ectopic Pregnancy


The Ectopic Pregnancy Trust www.ectopic.org.uk

The charity for early pregnancy complications – providing information, education and support to those affected and to the health professionals who care for them.

Includes online forums that also list researchers requesting participants.



Skin Disorders

The National Eczema Society www.eczema.org

Skincell International Forum for Skin Disorders



www.skincell.org



Ehlers-Danlos Syndrome





The Ehlers-Danlos Support Group www.ehlers-danlos.org







P.O. Box 337

Aldershot,

Surrey

GU12 6WZ

Tel: 01252 690940

The website aims to share medical information about EDS, to make people aware of various support groups and events available, to give people the latest research on EDS, some advice on how to cope with living with EDS, show available publications, and to allow people to discuss personal issues on EDS with other people in our interactive Message Board.

Elderly Care

Age UK www.ageuk.org.uk

The Cinnamon Trust www.cinnamon.org.uk

Counsel and Care for Older People and their Families and Carers www.counselandcare.org.uk




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