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User Groups and Charities Across East Midlands and Wider


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Coeliac (Dermatitis Herpetiformis)


www.coeliac.org.uk

www.dermatitisherpetiformis.org.uk



Congenital Adrenal Hyperplasia


www.livingwithcah.com

Aims to give support to families and sufferers, increase awareness of the condition to the public and to the medical profession and raise funds to support research.

Crohn’s Disease


Crohn’s in Childhood Research Association www.cicra.org

National Association for Colitis and Crohn’s Disease www.nacc.org.uk





Cushing’s Disease/ Cushing Syndrome


www.cushingsacth.co.uk

Patient led and run website with information and forum.

Cyclical Vomiting Syndrome


www.cvsa.org.uk

A registered charity providing information and supporting sufferers and their families or those affected by Cyclical Vomiting Syndrome.

Cystic Fibrosis


Cystic Fibrosis Trust www.cftrust.org.uk

Information, support and research and an online forum.

Dancing Eyes


The Dancing Eye Syndrome Trust www.dancingeyes.org.uk

The Dancing Eye Syndrome Trust provides support and information to families of children with Dancing Eye Syndrome.

Deafness


The British Deaf Association www.bda.org.uk

Deaf Education Through Listening and Talking (DELTA) www.deafeducation.org.uk



www.hearingconcernlink.org

National Association of Deafened People www.nadp.org.uk

National Deaf Children’s Society www.ndcs.org.uk

Royal Association for Deaf People www.royaldeaf.org.uk

Royal National Institute for Deaf People www.rnid.org.uk

The Elizabeth Foundation for Deaf Children



www.elizabeth-foundation.org



Deaf/Blind


www.deafblind.org.uk

www.sense.org.uk



Dementia


The Alzheimers Society www.alzheimers.org.uk

Lewy-Net Dementia with Lewy Bodies www.nottingham.ac.uk/pathology/lewy/lewyhome.html

Pick’s Disease Support Group www.pdsg.org.uk




Dental Anxiety


Beyond Fear Dental phobia Support www.beyondfear.org

Dental Fear Central www.dentalfearcentral.org






Depression


Depression Alliance www.depressionalliance.org

Depression UK www.depressionuk.org

MDF the Bipolar organisation www.mdf.org.uk




Dermatomyositis/Polymyositis/Inclusion Body Myositis


Myositis Support Group www.myositis.org.uk

Provides advice and support to individuals and their families affected by Dermatomyositis, Polymyositis, Inclusion Body Myositis and Juvenile Dermatomyositis. Also raise funds and promote medical research to improve the diagnosis, treatment, management and understanding of these rare illnesses.

Devic's Disease


Devics and NMO Worldwide Support www.devic.org.uk

Has information about the condition, chat forums, a page where you can advertise for a penpal, a special area for families affected by Devic's and NMO, and links to other sites that could be of interest.

Diabetes


Diabetes UK www.diabetes.org.uk

Diabetes UK is the largest organisation in the UK working for people with diabetes, funding research, campaigning and helping people live with the condition.

Disability


Ableize Disability Directory

www.ableize.com

Assist Uk www.assist-uk.org

Association of Disabled Professionals www.adp.org.uk

Association of Wheelchair Children www.go-kids-go.org.uk

Queen Elizabeth’s Foundation for Disabled People www.qefd.org

BLESMA British Limbless Ex-Service Men's Association

www.blesma.org

British Computer Society Disability Group www.disability.bcs.org.uk

CALVERT Trust www.calvert-trust.org.uk

Disability Alliance www.disabilityalliance.org

Disability, Pregnancy & Parenthood International www.dppi.org.uk

Disabled parent’s Network www.disabledparentsnetwork.org.uk

Limbless Association www.limbless-association.org

RADAR (Royal Association for Disability And Rehabilitation)

www.radar.org.uk




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