Arteriovenous Malformation
AVM Support UK
www.avmsupport.org.uk
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Aunique group working throughout the UK offering free, patient friendly information and support to all whose lives have been affected by the rare condition Arteriovenous Malformation (a tangle of abnormal blood vessels).
| Arthritis |
www.arthritisresearchuk.org
www.arthriticassociation.org.uk
www.arthritiscare.org.uk
www.barc.org.uk (Birmingham Arthritis Resource Centre)
www.ccaa.org.uk (The Children’s Chronic Arthritis Association)
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Arthrogryposis |
The Arthrogryposis Group
www.tagonline.org.uk
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Offer telephone support on a regional cluster basis where all the volunteers of our Contact Network have a wide experience of arthrogryposis. Also arrange area get-togethers and social events where people can meet each other and exchange experiences.
There is an ‘information share’ area on the website with postings from people diagnosed with this condition.
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Asthma |
Asthma Uk
www.asthma.org.uk
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Has an advice line and lots of information and links on the website.
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Ataxia |
Ataxia UK
www.ataxia.org.uk
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Ataxia UK works in two main ways: funding research into finding treatments and a cure for ataxia, and supporting people through a range of services.
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Attention Deficit Hyperactivity Disorder (ADHD) |
The Hyperactive Children's Support Group (HACSG)
www.hacsg.org.uk
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A registered charity which has been successfully helping ADHD/Hyperactive children and their families for over 30 years. The HACSG is Britain's leading proponent of a dietary approach to the problem of hyperactivity.
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Autism |
Autism Independent UK
www.autismuk.com
Autistic Society
www.autisticsociety.org
The National Autistic Society
www.autism.org.uk
Parents for the Early intervention of Autism (Peach)
www.peach.org.uk
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Back Pain |
www.backcare.org.uk
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Features information and also newsflashes regarding researchers needing input from sufferers as participants.
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www.barthsyndrome.org.uk
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Information for affected families and medical professionals and aiming to help to achieve a fast and accurate diagnosis, followed by the best care and support.
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Beckwith-Wiedemann Syndrome (BWS) |
Beckwith-Wiedemann Syndrome Support Group
www.bws-support.org.uk
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A forum for sufferers to share problems and information and to act as a self-help group. It aims to promote both public and professional awareness of BWS and to support and encourage research.
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Bed-wetting |
Education and Resources for Improving Childhood Continence (ERIC)
www.eric.org.uk
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This website provides information and support on childhood bedwetting, daytime wetting, constipation and soiling to children, young people, parents and professionals.
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Bereavement |
The Child Bereavement Trust www.childbereavement.org.uk
The Compassionate friends
www.tcf.org.uk
The Laura Centre (Leicester)
www.thelauracentre.org.uk
Cruse Bereavement Care
www.crusebereavementcare.org.uk
PAPYRUS Prevention of Young Suicide
www.papyrus-uk.org
Survivors of Bereavement by Suicide
www.uk-sobs.org.uk
Winston’s Wish The Charity for Bereaved Children www.winstonswish.org.uk
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Birth Defects |
Newlife Foundation for Disabled Children
www.newlifecharity.co.uk
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Support, links to medical research and information.
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Bladder |
Baldder Extrophy Family Association www.bladderexstrophy.co.uk
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A support network for families of children born with bladder/cloacal exstrophy and/or epispadias. The Association is based in the UK with strong links worldwide.
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