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User Groups and Charities Across East Midlands and Wider


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Lichen Sclerosus


National Lichen Sclerosus Support Group

www.lichensclerosus.org

Fabia Brackenbury


Flat 91 Homecourt House, Bartholomew Street West, Exeter EX4 3AE

Email: admin@lichensclerosus.org



Information and calls for research participation.

Liver


The British Liver Trust www.britishlivertrust.org.uk

The Children’s Liver Disease Foundation www.childliverdisease.org



Obstetric Cholestasis Support and Information Service www.ocsupport.org.uk

The PBC Foundation (UK) www.pbcfoundation.org.uk

PSC Support www.psc-support.demon.co.uk



Primary Sclerosing Cholangitis Trust

www.psctrust.com



Lowe Syndrome


Lowes Syndrome Association www.lowesyndrome.org

LSA
PO Box 864346
Plano, Texas 75086-4346

Information, support, networking and research.

Lower Limb Abnormalities


STEPS www.steps-charity.org.uk

helpline 01925 750271 begin_of_the_skype_highlighting    

Email info@steps-charity.org.uk


Information, support, networking and research.

Lung


The British Lung Foundation www.lunguk.org

SILA (Sarcoidosis and Interstitial Lung Association)

www.sila.org.uk



Lupus


Lupus UK www.lupusuk.org.uk

Information, support, regional groups and grants for research.

Lyme Disease


EuroLyme www.health.groups.yahoo.com/group/eurolyme

Lyme Disease Action www.lymediseaseaction.org.uk





Lymphoedema


Lymphoedema Support Network

www.lymphoedema.org

Lymphoedema Support Network


St. Luke's Crypt
Sydney Street
London
SW3 6NH

Telephone: 020 7351 0990 begin_of_the_skype_highlighting     

Email: adminlsn@lymphoedema.freeserve.co.uk end_of_the_skype_highlighting


Information for patients and health professionals and support.

Lymphoma


Lymphoma Association www.lymphoma.org.uk

PO Box 386


Aylesbury
Bucks
HP20 2GA

Tel: 0808 808 5555



Information and support for patients, their families and friends. Also an online forum.

Macular Disease


Macular Disease Society www.maculardisease.org

PO Box 1870, Andover, SP10 9AD

Tel: 01264 350551     

Email: info@maculardisease.org



Information, support, regional groups and conducts research.

Madelung Wrist Deformity


Madelung Wrist Deformity Self Help

www.divdev.fsnet.co.uk/dysch.htm

Contact details are only to join the group as it is run by a volunteer.



A support group that has information in several languages as well.

Mal de Debarquement Syndrome


MdDS UK Support Group www.mdds.org.uk

Information and support

Malignant Hyperthermia

British Malignant Hyperthermia


Association www.bmha.co.uk

Leeds MH Investigation Unit
St. James Hospital
Beckett Street Leeds
LS9 7TF
Tel: 0113 206 5270 begin_of_the_skype_highlighting             end_of_the_skype_highlighting

Information, support and fund raising for research.

Marfan


Marfan Association UK www.marfan-association.org.uk

Rochester House

5 Aldershot Road

Fleet


Hampshire

GU51 3NG


 

Tel: 01252 810472 begin_of_the_skype_highlighting            

Email: contactus@marfan-association.org.uk


Support, education and research.

Meniere’s Disease


The Ménière's Society www.menieres.co.uk

The Rookery


Surrey Hills Business Park
Wotton
Dorking
Surrey
RH5 6QT
Tel: 01306 876883

Information and support.
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