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Introduction and scope of the bibliography


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Faulkner A, Thomas P. User-led research and evidence-based medicine. British Journal of Psychiatry, 2002, 180, 1-3.

Gillard S, Stacey E. All talk: experiencing user-led research. A Life in the Day 2005, 9(2), 27-30.


Hounsell J, Owens C. User researchers in control. Mental Health Today, 2005, 29-32.
Pollock L. User-led research: who's asking? Mental Health Nursing, 2002, 22/1(17-18).
Yates BD, McEwan C, Eadie D. How to involve hard to reach groups: a consumer-led project with lay carers of people with advanced HIV infection. Public Health, 1997, 111/5(297-303).
Discussion papers on participatory research, action research or community-based methods in health and social care research
Abelson J, Forest P, Eyles J, Casebeer A, Martin E, Mackean G. Examining the role of context in the implementation of a deliberative public participation experiment: results from a Canadian comparative study. Social Science & Medicine, 2007, 64/10(2115-2128).
Abelson J, Forest PG, Eyles J, Smith P, Martin E, Gauvin FP. Deliberations about deliberative methods: issues in the design and evaluation of public participation processes Social Science & Medicine, 2003, 57/2(239-51).
Adams R, McCullough A. The urban practitioner and participation in research within a streetwork context. Community, Work and Family, 2003, 6(3), 269-287.
Ahmed SM, Palermo A-G S. Community Engagement in Research: Frameworks for Education and Peer Review. American Journal of Public Health, 2010, 100, (8) 1380-1387.
Benoit, C., Jansson, M., Millar, A., & Phillips, R. (2005). Community-academic research on hard-to-reach populations: Benefits and challenges. Qualitative Health Research,15, 263-282.

Bidwell, D. 2009. Is Community-Based Participatory Research Postnormal Science? Science Technology & Human Values, 34, (6) 741-761.


Bogart, L.A. & Uyeda, K. 2009. Community-Based Participatory Research: Partnering With Communities for Effective and Sustainable Behavioral Health Interventions. Health Psychology, 28, (4) 391-393.
Buhler C. Empowered participation of users with disabilities in R&D projects. International Journal of Human-Computer Studies, October 2001, 55/4(645-659).
Caine, K.J., Salomons, M.J., & Simmons, D. 2007. Partnerships for social change in the Canadian North: Revisiting the insider-outsider dialectic. Development and Change, 38, (3) 447-471.
Campbell M, Copeland B, Tate B. Taking the standpoint of people with disabilities in research: experiences with participation. Canadian Journal of Rehabilitation, 1998, 12/2(95-104).
Carey, T.S., Howard, D.L., Goldmon, M., Roberson, J.T., Godley, P.A., & Ammerman, A. 2005. Developing effective interuniversity partnerships and community-based research to address health disparities. Academic Medicine, 80, (11) 1039-1045.
Cargo M, Delormier T, Levesque L, Horn-Miller K, McComber A, Macaulay AC. Can the democratic ideal of participatory research be achieved? An inside look at an academic-indigenous community partnership. Health Education Research, 2008, 23/5(904-14).
Cargo M, Mercer SL. The value and challenges of participatory research: strengthening its practice. Annual Review of Public Health, 2008, 29/(325-50).
Cash RA. What is owed to the community before, during and following research: an ethical dialogue. Eastern Mediterranean Health Journal, 2006, 12 Suppl 1/(S37-41).
Catalani, C. & Minkler, M. 2010. Photovoice: A Review of the Literature in Health and Public Health. Health Education & Behavior, 37, (3) 424-451
Cave, A.J. & Ramsden, V.R. 2002. Hypothesis: The research page - Participatory action research. Canadian Family Physician, 48, 1671-1672
Chappell AL. Emergence of participatory methodology in learning difficulty research: understanding the context. British Journal of Learning Disabilities, 2000, 28/1(38-43).
Chen DT, Jones L, Gelberg L. Ethics of clinical research within a community-academic partnered participatory framework. Ethnicity & Disease, 2006, 16/1 Suppl 1(S118-35).
Chiu LF. Engaging communities in health intervention research/practice. Critical Public Health, 2008, 18/2(151-159).
Christopher S, Watts V, McCormick AKHG, Young S. Building and maintaining trust in a community-based participatory research partnership. American Journal of Public Health, 2008, 98 (8), 1398-1406.
Cornwall A, Jewkes R. What is participatory research? Social Science & Medicine, 1995, 41/12(1667-76).
Costa J, Herbert C, Macaulay AC. Participatory research in primary care. Journal of Interprofessional Care, 2004 18/4(451-3).
Dickert N, Sugarman J. Ethical goals of community consultation in research. American Journal of Public Health, 2005, 95/7(1123-7).
Dickert, N.W. & Sugarman, J. 2006. Community consultation: Not the problem - an important part of the solution. American Journal of Bioethics, 6, (3) 26-28
Dickert, N.W. & Sugarman, J. 2007. Getting the ethics right regarding research in the emergency setting: Lessons from the PolyHeme study.
Dickinson, W.P. & Rosenthal, M.P. 2002. Community research partnerships and social advocacy to accomplish change. Family Medicine, 34, (7) 536.
Dickson G, Green K. participatory action research: lessons learned with Aboriginal grandmothers. Health Care for Women International, 2001, 22(5), 471-482.
Downey, L.H., Anyaegbunam, C., & Scutchfield, F.D. 2009. Dialogue to Deliberation: Expanding the Empowerment Education Model. American Journal of Health Behavior, 33, (1) 26-36.
El Ansari W, Phillips CJ, Zwi AB. Narrowing the gap between academic professional wisdom and community lay knowledge: perceptions from partnerships. Public Health, 2002, 116/3(151-9).
Faridi Z, Grunbaum JA, Gray BS, Franks A, Simoes E. Community-based participatory research: necessary next steps. Preventing Chronic Disease, 2007, 4/3(A70).
Fisher PA, Ball TJ. Balancing empiricism and local cultural knowledge in the design of prevention research. Journal of Urban Health, .005, 82/2 Suppl 3(iii44-55).
Fleischman AR. Community engagement in urban health research. Journal of Urban Health, 2007, 84/4(469-71).
Flicker S, Savan B, Kolenda B, Mildenberger M. A snapshot of community-based research in Canada: Who? What? Why? How? Health Education Research, 2008, 23/1(106-14).
Flicker, S., Travers, R., Guta, A., McDonald, S., & Meagher, A. 2007. Ethical dilemmas in community-based participatory research: Recommendations for institutional review boards. Journal of Urban Health-Bulletin of the New York Academy of Medicine, 84, (4) 478-493
George MA, Daniel M, Green LW. Appraising and funding participatory research in health promotion. International Quarterly of Community Health Education, 2006, 26/2(171-87).
Graham K, Chandler-Coutts M. Community action research: who does what to whom and why? Lessons learned from local prevention efforts (international experiences). Substance Use & Misuse, 2000, 35/1-2(87-110).
Green, L., Daniel, M., & Novick, L. 2001. Partnerships and coalitions for community-based research. Public Health Reports, 116, 20-31
Green, L.W. 2004. Ethics and community-based participatory research: Commentary on Minkler. Health Education & Behavior , 31, (6) 698-701
Hagey RS. The use and abuse of participatory action research. Chronic Diseases in Canada, 1997, 18/1(1-4).
Hanks CA. Community empowerment: a partnership approach to public health program implementation. Policy, Politics & Nursing Practice, 2006, 7/4(297-306).
Heron, J., & Reason, P. (1997). A participatory inquiry paradigm. Qualitative Inquiry, 3(3), 274-294.
Horowitz, C.R., Robinson, M., & Seifer, S. 2009. Community-Based Participatory Research From the Margin to the Mainstream Are Researchers Prepared? Circulation, 119, (19) 2633-2642.
Israel BA, Schulz AJ, Parker EA, Becker AB. Review of community-based research: assessing partnership approaches to improve public health. Annual Review of Public Health 1998;19:173–202.
Israel BA, Schulz AJ, Parker EA, Becker AB. Community-based participatory research: Policy recommendations for promoting a partnership approach in health research. Education for Health 2001;14:182–197.
Johnston, C. & Woody, S. 2008. Ethical challenges in community-based research: Introduction to the series. Clinical Psychology-Science and Practice, 15, (2) 115-117
Jones L, Wells K. Strategies for academic and clinician engagement in community-participatory partnered research. JAMA, 2007, 297/4(407-10).
Justo, L. 2004. Participatory research: A way to reduce vulnerability. American Journal of Bioethics, 4, (3) 67-68
Kelley BR. Community-based research: a tool for community empowerment and student learning. Journal of Nursing Education, 1995, 34/8(384-6).
Katz DL. Representing your community in community-based participatory research: differences made and measured Preventing Chronic Disease, 2004, 1/1(A12).
Kelly, P.J. 2005. Practical suggestions for community interventions using participatory action research. Public Health Nursing, 22, (1) 65-73
Kennedy, C., Vogel, A., Goldberg-Freeman, C., Kass, N., & Farfel, M. 2009. Faculty Perspectives on Community-Based Research: "I See This Still As A Journey". Journal of Empirical Research on Human Research Ethics, 4, (2) 3-16
Khanlou, N. & Peter, E. 2005. Participatory action research: considerations for ethical review. Social Science & Medicine, 60, (10) 2333-2340.
Kone A, Sullivan M, Senturia KD, Chrisman NJ, Ciske SJ, Krieger JW. Improving collaboration between researchers and communities. Public Health Reports, 2000, 115/2-3(243-8).
Lasker RD, Weiss ES. Broadening participation in community problem solving: A multidisciplinary model to support collaborative practice and research. Journal of Urban Health 2003;80:14–47. discussion 48–60.
Lax W, Galvin K. Reflections on a community action research project: interprofessional issues and methodological problems. Journal of Clinical Nursing, 2002, 11/3(376-86).
Letts L. Occupational therapy and participatory research: a partnership worth pursuing. American Journal of Occupational Therapy, 01 January 2003, 57/1(77-87).
Leykum, L.K., Pugh, J.A., Lanham, H.J., Harmon, J., & McDaniel, R.R. 2009. Implementation research design: integrating participatory action research into randomized controlled trials. Implementation Science, 4, doi:10.1186/1748-5908-4-69.
Leung MW, Yen IH, Minkler M. Community based participatory research: a promising approach for increasing epidemiology's relevance in the 21st century. International Journal of Epidemiology, 2004, 33/3(499-506).
Lindsey, E., Sheilds, L., & Stajduhar, K. 1999. Creating effective nursing partnerships: relating community development to participatory action research. Journal of Advanced Nursing, 29, (5) 1238-1245.
Litt IF. Research with, not on, adolescents: community-based participatory research. Journal of Adolescent Health, 2003, 33/5(315-6).
Lofman P, Pelkonen M, Pietila. A Ethical issues in participatory action research. Scandinavian Journal of Caring Sciences, 2004, 8/3(333-340).
Macaulay AC. Promoting participatory research by family physicians. Annals of Family Medicine, 2007, 5/6(557-60).
Macaulay, A.C., Gibson, N., Freeman, W.L., Commanda, L.E., Mccabe, M.L., Robbins, C.M., & Twohig, P.L. 2001. The community's voice in research. Canadian Medical Association Journal, 164, (12) 1661-1662.

Macaulay AC, Nutting PA. Moving the frontiers forward: incorporating community-based participatory research into practice-based research networks. Annals of Family Medicine, 2006, 4/1(4-7).


Macaulay AC, Ryan JG. Community needs assessment and development using the participatory research model. Annals of Family Medicine, 2003, 1/3(183-4).
Maiter, S., Simich, L., Jacobson, N., & Wise, J. 2008. Reciprocity: An ethic for community-based participatory action research. Action Research, 6, (3) 305-325.
Majdzadeh, R., Forouzan, A.S., Pourmalek, F., & Malekafzali, H. 2009. Community-Based Participatory Research; an approach to Deal with Social Determinants of Health. Iranian Journal of Public Health, 38, 50-53.
Malekaftali, H., Forouzan, A., Eftekhari, M.B., Farahani, M.A., & Vishteh, H.R.K. 2009. Community-Based Participatory Research: How Do Academicians Rate Success in Iran? Iranian Journal of Public Health, 38, 54-57.
Malone, R.E., Yerger, V.B., McGruder, C., & Froelicher, E. 2006. "It's like Tuskegee in reverse": A case study of ethical tensions in institutional review board review of community-based participatory research. American Journal of Public Health, 96, (11) 1914-1919.
Marincowitz, G.J. 2003. How to use participatory action research in primary care. Family Practice, 20, (5) 595-600.
Martin, N., Garcia, A.C., & Leipert, B. 2010. Photovoice and Its Potential Use In Nutrition and Dietetic Research. Canadian Journal of Dietetic Practice and Research, 71, (2) 93-97.
Minkler M. Ethical challenges for the "outside" researcher in community-based participatory research. Health Education & Behavior, 2004, 31/6(684-97).
Minkler M. Using Participatory Action Research to build Healthy Communities. Public Health Reports, March 2000, 115/2-3(191-7).
Minkler M. Community-based research partnerships: challenges and opportunities. Journal of Urban Health, June 2005, 82/2 Suppl 2(ii3-12).
Mitchell, T.L. & Baker, E. 2005. Community-building versus career-building research: The challenges, risks, and responsibilities of conducting research with Aboriginal and Native American communities. Journal of Cancer Education, 20, (1) 41-46.
Mongeau S, Champagne M, Liben S. Participatory research in pediatric palliative care: benefits and challenges. Journal of Palliative Care, 2007, 23/1(5-13).
Moore, D.E., Niebler, S.E., Schlundt, D.G., & Pichert, J.W. 2007. A conceptual model for using action inquiry technologies to address disparities in depression. Journal of Continuing Education in the Health Professions, 27, S55-S64.
Moreno-John G, Fleming C, Ford ME, Lichtenberg P, Mangione CM, Perez-Stable EJ, Tilley B, Washington OG, Carrasquillo O. Mentoring in community-based participatory research: the RCMAR experience Ethnicity & Disease, 2007, 17/1 Suppl 1(S33-43).
Myser C. Community-based participatory research in United States bioethics: steps toward more democratic theory and policy. American Journal of Bioethics, 2004, 4/2(67-8).
Naylor PJ, Wharf-Higgins J, Blair L, Green L, O'Connor B. Evaluating the participatory process in a community-based heart health project. Social Science & Medicine, 2002, 55/7(1173-87).
Newell, CJ, South J. Participating in community research: exploring the experiences of lay

researchers in Bradford. Community, Work & Family, 2009, 12:1, 75-89.


Niba M, Green J. The impact of participatory and non-participatory evaluations on meeting project objectives. African Journal of AIDS Research, 2005, 492), 103-113.
Northway R. Finding out together: lessons in participatory research for the learning disability nurse. Mental Health & Learning Disabilities Care, 2000, 3/7(229-232).
Nyden P. Academic incentives for faculty participation in community-based participatory research. Journal of General Internal Medicine, July 2003, 18/7(576-85).
Olshansky E, Sacco D, Braxter B, Dodge P, Hughes E, Ondeck M, Stubbs ML, Upvall MJ. Participatory action research to understand and reduce health disparities. Nursing Outlook, 2005, 53/3(121-6).
Oscos-Sanchez MA, Lesser J, Kelly P. Cultural competence: a critical facilitator of success in community-based participatory action research. Issues in Mental Health Nursing, 2008, 29/2(197-200).
O'Toole TP, Aaron KF, Chin MH, Horowitz C, Tyson F. Community-based participatory research: opportunities, challenges, and the need for a common language. Journal of General Internal Medicine, 2003, 18/7(592-4).
Partin MR. A challenging but critical endeavor: balancing responsiveness and rigor in community-based participatory research Health Education & Behavior, 2006, 33/5(574-7; discussion 578-9).
Plumb M, Price W, Kavanaugh-Lynch MH. Funding community-based participatory research: lessons learned. Journal of Interprofessional Care, 2004, 18/4(428-39).
Pollard N, Sakellariou D. Operationalizing community participation in community-based rehabilitation: exploring the factors. Disability & Rehabilitation, 2008, 30/1(62-70).
Postma, J. 2008. Balancing power among academic and community partners: The case of El Proyecto Bienestar. Journal of Empirical Research on Human Research Ethics, 3, (2) 17-32.
Powers JL, Tiffany JS. Engaging Youth in Participatory Research and Evaluation. J Public Health Management Practice, 2006, November(Suppl), S79–S87.
Pullmann, M.D. 2009. Participatory Research in Systems of Care for Children's Mental Health. American Journal of Community Psychology, 44, (1-2) 43-53.
Rains JW, Ray DW. Participatory action research for community health promotion. Public Health Nursing, August 1995, 12/4(256-61).
Resnick MD. Challenges and prospects for community-partnered research. Journal of Adolescent Health, June 2007, 40/6(487-8).
Resnik, D.B. & Kennedy, C.E. 2010. Balancing Scientific and Community Interests in Community-Based Participatory Research. Accountability in Research-Policies and Quality Assurance, 17, (4) 198-210.
Rhodes, S.D., Malow, R.M., & Jolly, C. 2010. Community-Based Participatory Research: A New and Not-So-New Approach to Hiv/Aids Prevention, Care, and Treatment. Aids Education and Prevention, 22, (3) 173-183.
Richardson M. Participatory research methods: people with learning disabilities. British Journal of Nursing, 23 October 1997, 6/19(1114-1121).
Richardson, L.D., Quest, T.E., & Birnbaum, S. 2005. Communicating with communities about emergency research. Academic Emergency Medicine, 12, (11) 1064-1070.
Richardson, L.D., Rhodes, R., Ragin, D.F., & Wilets, I. 2006. The role of community consultation in the ethical conduct of research without consent. American Journal of Bioethics, 6, (3) 33-35.
Salmon, A. (2007) Walking the talk: How participatory interview methods can democratize research. Qualitative Health Research, 17, 982-993.
Schmittdiel, J.A., Grumbach, K., & Selby, J.V. 2010. System-Based Participatory Research in Health Care: An Approach for Sustainable Translational Research and Quality Improvement. Annals of Family Medicine, 8, (3) 256-259.
Schulz AJ, Krieger J, Galea S. Addressing social determinants of health: community-based participatory approaches to research and practice. Health Education & Behavior, June 2002, 29/3(287-95),
Seifer SD, Calleson DC. Health professional faculty perspectives on community-based research: implications for policy and practice. Journal of Interprofessional Care, 01 November 2004, 18/4(416-427).
Shalowitz, M.U., Isacco, A., Barquin, N., Clark-Kauffman, E., Delger, P., Nelson, D., Quinn, A., & Wagenaar, K.A. 2009. Community-Based Participatory Research: A Review of the Literature With Strategies for Community Engagement. Journal of Developmental and Behavioral Pediatrics , 30, (4) 350-361.
Sharp, R.R. & Foster, M. 2000. Involving study populations in the review of genetic research. Journal of Law Medicine & Ethics, 28, (1) 41-+.
Sheehan, M. 2006. Is the community consultation requirement necessary? American Journal of Bioethics, 6, (3) 38-40.
Sheilds L, Brunt JH. Connecting for health: researching with community. Canadian Journal of Cardiovascular Nursing, 01 May 2003, 13/2(8-13).
Shiu-Thornton, S. 2003. Addressing cultural competency in research: Integrating a community-based participatory research approach. Alcoholism-Clinical and Experimental Research, 27, (8) 1361-1364.
Silverstein, M., Banks, M., Fish, S., & Bauchner, H. 2008. Variability in institutional approaches to ethics review of community-based research conducted in collaboration with unaffiliated organizations. Journal of Empirical Research on Human Research Ethics, 3, (2) 69-76.
Simon, C., Mosavel, M., & van Stade, D. 2007. Ethical challenges in the design and conduct of locally relevant international health research. Social Science & Medicine, 64, (9) 1960-1969.
Simon, C. & Mosavel, M. 2010. Community Members as Recruiters of Human Subjects: Ethical Considerations. American Journal of Bioethics, 10, (3) 3-11.
Smikowski, J., Dewane, S., Johnson, M.E., Brems, C., Bruss, C., & Roberts, L.W. 2009. Community-Based Participatory Research for Improved Mental Health. Ethics & Behavior, 19, (6) 461-478.
Stiffman A, Freedenthal S, Brown E, Ostmann E, Hibbeler P. Field Research with underserved minorities: the ideal and the real. Journal of Urban health, 2005, 82(2, suppl. 3, iii56-iii66.
Street, J., Baum, F., & Anderson, I. 2007. Developing a collaborative research system for Aboriginal health. Australian and New Zealand Journal of Public Health, 31, (4) 372-378.
Story, L., Hinton, A., & Wyatt, S.B. 2010. The role of community health advisors in community-based participatory research. Nursing Ethics, 17, (1) 117-126.
Stuttaford M, Coe C. The "learning" component of participatory learning and action in health research: reflections from a local Sure Start evaluation. Qualitative Health Research, 01 December 2007, 17/10(1351-1360).
Suarez-Balcazar Y, Harper GW, Lewis R. An interactive and contextual model of community-university collaborations for research and action. Health Education & Behavior, 2005, 32/1(84-101).
Taylor J, Wilkinson D, Cheers B. Is it consumer or community participation? Examining the links between 'community' and 'participation'. Health Sociology Review, 2006, 15/1(38-47).
Teram E, Schachter CL, Stalker CA. The case for integrating grounded theory and participatory action research: empowering clients to inform professional practice. Qualitative Health Research, 2005, 15/8(1129-1140).
Thomas N, O’Kane C. 1998. The ethics of participatory research with children. Children & Society 12:336–348.
Thompson, B., Ondelacy, S., Godina, R., & Coronado, G.D. 2010. A Small Grants Program to Involve Communities in Research. Journal of Community Health, 35, (3) 294-301.
Tindana, P.O., Singh, J.A., Tracy, C.S., Upshur, R.E.G., Daar, A.S., Singer, P.A., Frohlich, J., & Lavery, J.V. 2007. Grand challenges in global health: Community engagement in research in developing countries. PLoS Medicine, 4, (9) 1451-1455.
Wallerstein, N. 1999. Power between evaluator and community: research relationships within New Mexico's healthier communities. Social Science & Medicine, 49, (1) 39-53.
Wallwork E. Ethical analysis of research partnerships with communities. Kennedy Institute of Ethics Journal, March 2008, 18/1(57-85).
Wang CC. Photovoice: a participatory action research strategy applied to women's health. Journal of Women's Health, 1999, 8/2(185-192).
Washington WN. Collaborative/Participatory research. Journal of Health Care for the Poor & Underserved, 2004, 15/1(18-29).
Weglicki LS, Rice VH, Hammad A. Science and the community: a collaborative model for integration of research within the community. Ethnicity & Disease, 2005, 15/1 Suppl 1(S1-35-8).
Westhues A, Ochocka J, Jacobson N, Simich L, Maiter S, Janzen R, Fleras A, Developing theory from complexity: reflections on a collaborative mixed method participatory action research study. Qualitative Health Research, 01 May 2008, 18/5(701-717).
White GW, Suchowierska M, Campbell M Developing and systematically implementing participatory action research. Archives of Physical Medicine & Rehabilitation, 2004, 85/4.
Wright MT, Roche B, von Unger H, Block M, Gardner B. A call for an International Collaboration on Participatory Research for Health. Health Promotion International, 2009, 25(1), 115-122.
Wright MT, Gardner B, Roche B, von Unger H, Ainlay C. Building an International Collaboration on Participatory Health Research. Progress in Community Health Partnerships: Research, Education, and Action 2010, 4(1), 31-36.
Health or social care research using participatory or action research methods, or community-based methods
Ajayi, I.O., Oladepo, O., Falade, C.O., Bamgboye, E.A., & Kale, O. 2009. The development of a treatment guideline for childhood malaria in rural Southwest Nigeria using participatory approach. Patient Education and Counseling, 75, (2) 227-237
Allamani A, Casswell S, Graham K, Holder HD, Holmila M, Larsson S, Nygaard P. Introduction: community action research and the prevention of alcohol problems at the local level. Substance Use & Misuse, J 2000, 35/1-2(1-10).
Allen J, Mohatt G, Rasmus S, Hazel K, Thomas L, Lindley S. The tools to understand: community as co-researcher on culture-specific protective factors for Alaska natives. Journal of Prevention and Intervention in the Community, 2006, 32(1-2), 41-60.
Allen-Meares, P., Hudgins, C.A., Engberg, M.E., & Lessnau, B. 2005. Using a collaboratory model to translate social work research into practice and policy. Research on Social Work Practice, 15, (1) 29-40.
Andrews JO, Bentley G, Crawford S, Pretlow L, Tingen MS. Using community-based participatory research to develop a culturally sensitive smoking cessation intervention with public housing neighborhoods. Ethnicity & Disease, 2007, 17/2(331-7).
Angell K, Krehna M, McCoy R, Donnelly P, Turner-Cobb J, Graddy K, Kraemer H, Koopman C. Psychosocial intervention for rural women with breast cancer: The Sierra-

Stanford Partnership. Journal of Internal Medicine, 2003, 18, 499-507.


Anthony, J.S., Lee, R.C., Barry, D.G., & Kappesser, M. 2010. Recruiting and Keeping African American Women in an Ethnographic Study of Pregnancy: The Community-Based Partnership Model. Field Methods, 22, (2) 125-132.
Arcury, T.A., Austin, C.K., Quandt, S.A., & Saavedra, R. 1999. Enhancing community participation in intervention research: Farmworkers and agricultural chemicals in North Carolina. Health Education & Behavior, 26, (4) 563-578
Arcury, T.A., Quandt, S.A., & Dearry, A. 2001. Farmworker pesticide exposure and community-eased participation research: Rationale and practical applications. Environmental Health Perspectives, 109, 429-434.
Austin, W., Goble, E., Strang, V., Mitchell, A., Thompson, E., Lantz, H., Balt, L., Lemermeyer, G., & Vass, K. 2009. Supporting Relationships Between Family and Staff in Continuing Care Settings. Journal of Family Nursing, 15, (3) 360-383.
Baffour, T.D. & Chonody, J.M. 2009. African-American Women's Conceptualizations of Health Disparities: A Community-Based Participatory Research Approach. American Journal of Community Psychology, 44, (3-4) 374-381.
Baker, T.A. & Wang, C.C. 2006. Photovoice: Use of a participatory action research method to explore the chronic pain experience in older adults. Qualitative Health Research, 16, (10) 1405-1413.
Balcazar FE, Keys CB, Kaplan DL, Suarez-Balcazar Y. Participatory action research and people with disabilities: principles and challenges. Canadian Journal of Rehabilitation, 01 December 1998, 12/2(105-112).
Belam J, Harris G, Kernick D, Kline F, Lindley K, Mitchell A, Reinhold D. A qualitative study of migraine involving patient researchers. British Journal of General Practice, 2005, February 1; 55(511): 87–93.
Berge, J.M., Mendenhall, T.J., & Doherty, W.J. 2009. Using Community-Based Participatory Research (CBPR) to Target Health Disparities in Families. Family Relations, 58, (4) 475-488.
Bluthenthal RN, Jones L, Fackler-Lowrie N, Ellison M, Booker T, Jones F, McDaniel S, Moini M, Williams KR, Klap R, Koegel P, Wells KB. Witness for Wellness: preliminary findings from a community-academic participatory research mental health initiative. Ethnicity & Disease, 2006, 16/1 Suppl 1(S18-34).
Borg, M., Karlsson, B., & Kim, H.S. 2010. Double helix of research and practice-developing a practice model for crisis resolution and home treatment through participatory action research. International Journal of Qualitative Studies on Health and Well-Being, 5, (1)
Boston P, Jordan S, MacNamara E, Kozolanka K, Bobbish-Rondeau E, Iserhoff H, Mianscum S, Mianscum-Trapper R, Mistacheesick I, Petawabano B, Sheshamush-Masty M, Wapachee R, Weapenicappo J. Using participatory action research to understand the meanings aboriginal Canadians attribute to the rising incidence of diabetes. Chronic Diseases in Canada, 1997, 18/1(5-12).
Bourke L. Participatory research in breast cancer: a case study in regional Victoria. Contemporary Nurse: A Journal for the Australian Nursing Profession, 2002, 12/3(246-252).
Bourke, L. 2009. Reflections on doing participatory research in health: participation, method and power. International Journal of Social Research Methodology, 12, (5) 457-474
Breslin M, Mullan, RJ, Montori VM (2008), The design of a decision aid about diabetes medications for use during the consultation with patients with type 2 diabetes. Patient Education and Counseling 73(3), 465-472.
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