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Introduction and scope of the bibliography


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Turner M, Beresford P (2005), What User Controlled Research means, and what it can do. http://www.invo.org.uk/pdfs/Easyreadusercontrolled150806.pdf


Turner M, Beresford P (2005), User Controlled Research: its meanings and potential. Full Report. Shaping Our Lives and the Centre for Citizen Participation, Brunel University.

http://www.invo.org.uk/pdfs/UserCon_Rptfinal%20web081205.pdf
TwoCan Associates. An evaluation of the process and impact of patient and public involvement in the advisory groups of the UK Clinical Research Collaboration. TwoCan Associates, January 2009.
TwoCan Associates for the UKCRC and NCRI (2010): Patient and public involvement (PPI) in research groups – Guidance for Chairs. http://www.twocanassociates.co.uk/pdfs/GuidanceForChairs2.pdf
Viswanathan V, Eng E, Gartlehner G, Lohr K, Griffith D, Rhodes S, Samuel-Hodge C, Maty S, lux L, Webb L, Sutton S, Swinson T, Jackman A, Whitener L (2004), Community-based participatory research (CBPR): assessing the evidence. Evidence Report/Technology Assessment No. 99. Roackville, MD: Agency for Healthcare Research and Quality.
West, A. (1995) You're on your own: Young people's research on leaving care. London: Save the Children.
Worrall, S. (2000) Young People as Researchers: a learning resource pack. London: Save the Children.

BOOK CHAPTERS ON PPI IN HEALTH AND SOCIAL CARE RESEARCH

Abbott D (2010), Involving disabled children in research and consultations: issues, challenges and opportunities. In: Greener I, Holden C, Kilkey M (eds), Social Policy Review 22: Analysis and debate in Social Policy. Bristol: The Policy Press.


Bernard, W. T. (2000) ‘Participatory Research as Emancipatory Method: Challenges and Opportunities’, in D. Burton (ed.) Research Training for Social Scientists. London: Sage.
Cayton H, Hanley B (2001), Improving research through consumer involvement. In: M Baker, S Kirk (eds.), Research and development for the NHS. Oxford: Radcliffe Publishing Ltd.
Cooper C. Responding to unhappy childhoods in the UK: enhancing young people’s ‘well-being’ through participatory action research. In: Greener I, Holden C, Kilkey M (eds), Social Policy Review 22: Analysis and debate in Social Policy. Bristol: The Policy Press.
Cotterell P, Clarke P, Cawdrey D, Kapp J, Paine M, Wynn R. (2007) Becoming involved in research: A service user research advisory group. In Creative engagement in palliative care: New perspectives on user involvement. L. Jarrett, ed., Radcliffe Publishing, Oxford, pp. 101-115.
Entwistle V (2005), Involving service users in health services research. In: A Bowling, S Ebrahim (eds.), Handbook of health research methods: Investigation, measurement and analysis. Maidenhead: Open University Press.
Evans C, Fisher M (1999), Collaborative evaluation with service users; moving towards user-controlled research. In: I Shaw, J Lishman (eds.), Evaluation and Social Work practice. London: Sage.
Evans C, Fisher M (1999), User-controlled research and empowerment. In W Sherpa, L Wells (eds.), Empowerment practice in social work: developing richer conceptual foundations. Toronto: Canadian Scholars Press.
Evans I, Thornton H, Chalmers I (2006), Chapter 7. In Evans I, Thornton H, Chalmers. Testing treatments: better research for better healthcare. London: British Library.
Harding R, Whitfield G, Stllwell R (2010), Service users as peer research interviewers: why bother? In: Greener I, Holden C, Kilkey M (eds), Social Policy Review 22: Analysis and debate in Social Policy. Bristol: The Policy Press.
Hill S (2007), Involving the consumer in health research. In Saks M, Allsop J (eds.), Researching Health: Qualitative, Quantitative and Mixed Methods. London: Sage.

Hill, M. 1997. Participatory Research with Children. In Child and Family Social Work. Blackwell: London; pp171-183.


Jones A. 2004. Children and young people as researchers. In Doing Research with Children and Young People. Fraser S, Lewis V, Ding S, Kellett M, Robinson C (eds). The Open University/Sage: London; 113–130.
Kellett M, Ward B (2008) Children as active researchers: participation and power sharing. In: Moore, Shannon A. and Mitchell, Richard C. eds. Power, pedagogy and praxis: social justice in the globalized classroom. Critical issues in the future of learning and teaching (1). Rotterdam: Sense Publishers, pp. 91–104.
Kirby, P. (2001a) Involving Young People in Research in B. Franklin (Ed.) Handbook of Children's Rights, 2nd Edn. London: Routledge.
Mercer G. Emancipatory disability research. In: Barnes C, Oliver M, Barton L (eds.), Disability Studies Today. Cambridge: Blackwells, 2002.
Oliver S, Entwistle V, Hodnett E (2002) Roles for lay people in the implementation of health care research. In: Haines A, Donald A (eds) Getting research findings into practice (second edition). London: BMJ Publishing, pages 86-94.
Oliver S (2001) Making research more useful: Integrating different perspectives and different methods. In: Oliver S, Peersman G (eds) Useful research for effective health promotion. Buckingham: Open University Press, pages 167-179.
Oliver S. Users of health services: following their agenda. In: Hood S, Mayall B, Oliver S, eds. Critical issues in social research. Buckingham: Oxford University Press, 1999: 139-153.
Oliver S (2008) Public and Consumer Participation in Policy and research. In: Heggerson K, Quah S (eds) International Encyclopedia of Public Health. San Diego: Elsevier, 408-415.
Ramcharan, P. and Grant, G. 1994 ‘Setting one agenda for empowering persons with a disadvantage within the research process’, in M. Rioux and M. Bach (eds) 1994 Disability is not Measles: New Research Paradigms in Disability, Ontario: L’Institut Roeher.
Warren, S. (2000) Let's Do It Properly: inviting children to be researchers, in A. Lewis and G. Lindsay (Eds.) Researching Children's Perspectives. Buckingham: Open University Press.
Wilson, R, (2005), "You have to be pragmatic: methods, epistemology, and consumer involvement in research," in Burr, J, Nicolson, P, (eds) Researching Health Care Consumers: Critical Approaches, Basingstoke, Palgrave Macmillan.

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